ID #1016

How common are feeding problems in Costello syndrome?

From birth, children with CS have feeding difficulties, including a severe aversion to taking solids or fluids orally, and reflux (vomiting after feeding). Some babies require tube or gastrostomy feeding (where food is placed in the baby's stomach so they do not have to swallow it).

Feeding difficulties are considered the most common and challenging clinical problem in Costello children. The feeding situation might be very stressfull and exhausting for the whole family, which already has to deal with the situation of having a child with a genetic syndrome, and additionally has feelings of stress and guilt regarding the baby?s nutrition.

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